Understanding & Living with Dementia
In addition to many books written from different perspectives at your public library, here is online information
Education & links to support groups
Full range of resources and services for people living with Alzheimer Disease or related dementias, their care partners and families, some available in several languages.
“In response to COVID-19 and in a time where self isolation is imperative STAR has curated a comprehensive set of resources and solutions …constantly updated.” Keeping Healthy, Community Support, Cognitive Health & Dementia, Technology Basics, Living Independently, Mobility & Transportation, etc.
BC-based “charitable organization aims to support the health and wellness of Chinese and other older adults and their families….provides seniors and those caring for them with the knowledge, skills, and nurturing support they need to ease the stresses of aging.” Workshops, Webinars, Wellness Services (Qigong, Chair Yoga & Brain Games), Caregiver Wellspring etc.
Dementia Alliance International - The ‘global voice’ for dementia with many resources and services for people living with dementia and care partners
“online support groups and other activities for our members, free of charge in number of different time zones”
Hello! Our Voices Matter!“voices of people with dementia, where members share their personal stories of being diagnosed, and then living with dementia”
Engaging activity programs
“Our goal is to establish a provincial network of wellness programs to support people living with chronic brain disorders, their care partners, and healthy agers…and offer free wellness programming to fit your lifestyle” – arts, exercise, nutrition, mindfulness, improvisation, café and much more.
“Smile Brain Program is 12 weeks, 90 minute program based for seniors to continue and increase their memory, self-confidence, and social connection with others….similar to a program in Japan.”
“Improving quality of life for people living with dementia and their care partners… Zinnia’s content channels feature familiar faces, subjects, and sounds to help people feel engaged and connected... beautiful, immersive videos on familiar and well-loved topics are crafted to be meaningful.” Nature, Places, Nostalgia, Interests, Conversation Starters, Care Messages, Activities
“Seattle-based grassroots movement empowering persons with memory loss and their loved ones to remain connected and active in the community ...variety of dementia-friendly opportunities.” Links to mostly free virtual programs in the time of COVID-19 - Art, Poetry & Museums; Virtual Music & Dance; Exercise & Workouts; Videos of Zoos, Parks, Travel & More
Café Connect: Virtual Memory Café Directory
"Find information about Virtual Memory Cafes that you can access with a computer or by phone...from the comfort and safety of your own home." English, Spanish, Portuguese offered.
Research-based education & support
“Goal is to enhance knowledge of how Indigenous peoples understand and experience dementia and the impact of dementia on Indigenous peoples and communities.” Culturally Safe Care and Factsheets, Cultural Understandings, Practice Tools, Technology for Aging, International Strategies for Diagnosis
“P.I.E.C.E.S.™ is a holistic, person and care partner-directed model which enhances capacity at the individual, TEAM, organization and system levels to support the care of the older individual.”
P.I.E.C.E.S.™ Cornerstones + P.I.E.C.E.S.™ Enablers =
Enhanced Person & Care Partner Engagement AND Enhanced Organizational & System Capacity
Future Learn – free courses from academic institutions
Foundations in Dementia (University of Nottingham)
“Discover better ways to support people with dementia. Explore signs and symptoms, interventions, support networks and more.”
The Many Faces of Dementia (University College London)
“Gain a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses.”
Dementia and the Arts: Sharing Practice, Developing Understanding and Enhancing Lives (University College London)
“Explore, challenge and shape your perceptions of dementia through science and the creative arts.”
Media (online Webinars, TED talks, YouTube videos)
UBC-Lakehead University Community Conversation webinars
UBC-LU series prepared for the Building Capacity for Meaningful Participation by People Living with Dementia aimed at supporting organizations with planning, implementing, and evaluating dementia engagement and innovation projects.
In 2018-2019, the Alzheimer Society British Columbia hosted a series of webinars: Understanding Dementia; Understanding Communication (2-part); Behaviour (2-part)
Free signup for CORE access, then search for videos, webinars, documents with search term 'dementia'. Examples: Gitxsan Way of Knowing About Dementia; Caregiving during COVID-19; Korean Navigating to Care; Legal Rights
“Feedspot has a team of over 25 experts whose goal is to discover and rank popular blogs, podcasts and youtube channels in several niche categories... List is updated as we receive new blog submissions and re-ranked every few weeks. We also take direct feedback from users to make changes to the lists.”
Examples: Anne Basting How to Meaningfully Reconnect with Those Who Have Dementia; Lisa Genova What You Can Do to Prevent Alzheimer’s and more.